Skip to main content

Advertisement

Log in

Healthcare Consumers’ Attitudes Towards Physician and Personal Use of Health Information Exchange

  • Original Research
  • Published:
Journal of General Internal Medicine Aims and scope Submit manuscript

Abstract

BACKGROUND

Health information exchange (HIE), the electronic transmission of patient medical information across healthcare institutions, is on the forefront of the national agenda for healthcare reform. As healthcare consumers are critical participants in HIE, understanding their attitudes toward HIE is essential.

OBJECTIVE

To determine healthcare consumers’ attitudes toward physician and personal use of HIE, and factors associated with their attitudes.

DESIGN

Cross-sectional telephone survey.

PARTICIPANTS

English-speaking residents of the Hudson Valley of New York.

MAIN MEASURE

Consumer reported attitudes towards HIE.

KEY RESULTS

Of 199 eligible residents contacted, 170 (85%) completed the survey: 67% supported physician HIE use and 58% reported interest in using HIE themselves. Multivariate analysis suggested supporters of physician HIE were more likely to be caregivers for chronically ill individuals (OR 4.6, 95% CI 1.06, 19.6), earn more than $100,000 yearly (OR 3.5, 95% CI 1.2, 10.0), and believe physician HIE would improve the privacy and security of their medical records (OR 2.9, 95% CI 1.05, 7.9). Respondents interested in using personal HIE were less likely to be female (OR 0.4, 95% CI 0.1, 0.98), and more likely to be frequent Internet-users (OR 3.3, 95% CI 1.03, 10.6), feel communication among their physicians was inadequate (OR 6.7, 95% CI 1.7, 25.3), and believe personal HIE use would improve communication with their physicians (OR 4.7, 95% CI 1.7, 12.8).

CONCLUSIONS

Consumer outreach to gain further support for ongoing personal and physician HIE efforts is needed and should address consumer security concerns and potential disparities in HIE acceptance and use.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Figure 1
Figure 2
Figure 3

Similar content being viewed by others

Notes

  1. SAS and all other SAS Institute Inc. product or service names are registered trademarks or trademarks of SAS Institute Inc. In the USA and other countries. ® indicates USA registration.

References

  1. Chaudhry B, Wang J, Wu S, Maglione M, Mojica W, Roth E, Morton SC, Shekelle PG. Systematic review: impact of health information technology on quality, efficiency, and costs of medical care. Ann Intern Med. 2006;144(10):742–52.

    PubMed  Google Scholar 

  2. Walker J, Pan E, Johnston D, Adler-Milstein J, Bates DW, Middleton B. The value of health care information exchange and interoperability. Health Aff (Millwood). 2005 Jan-Jun;Suppl Web Exclusives:W5-10-W5-8.

  3. Blumenthal D. Launching HITECH. N Engl J Med. Feb 4;362(5):382–5.

  4. Steinbrook R. Personally controlled online health data—the next big thing in medical care? N Engl J Med. 2008;358(16):1653–6.

    Article  PubMed  CAS  Google Scholar 

  5. Tang PC, Ash JS, Bates DW, Overhage JM, Sands DZ. Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. J Am Med Inform Assoc. 2006;13(2):121–6.

    Article  PubMed  CAS  Google Scholar 

  6. Gibbons MC, Wilson RF, Samal L, Lehmann CU, Dickersin K, Lehmann HP, Aboumatar H, Finkelstein J, Shelton E, Sharma R, Bass EB. Impact of consumer health informatics applications. Evidence report/technology assessment No. 188. (Prepared by Johns Hopkins University Evidence-based Practice Center under contract No. HHSA 290-2007-10061-I). AHRQ Publication No. 09(10)-E019. Rockville, MD: Agency for Healthcare Research and Quality; 2009.

    Google Scholar 

  7. Kaelber D, Pan EC. The value of personal health record (PHR) systems. AMIA Annu Symp Proc. 2008;343–7.

  8. The Markle Foundation. Attitudes of Americans regarding personal health records and nationwide electronic health information exchange: key findings from two surveys of Americans, October, 2005. Available at: http://www.markle.org/sites/default/files/research_release_101105.pdf Accessed on April 19, 2011.

  9. The Markle Foundation. Americans overwhelmingly believe electronic personal health records could improve their health, June, 2008. Available at: http://www.markle.org/sites/default/files/ResearchBrief-200806.pdf Accessed on April 19, 2011.

  10. The Markle Foundation. Markle survey on health in a networked life 2010, Jan, 2011. Available at: http://www.markle.org/sites/default/files/20110110_HINLSurveyBrief_1.pdf Accessed on April 19, 2011.

  11. Schneider S, Kerwin J, Robbins C, Dean D. Consumer engagement in developing electronic health information systems: final report. (Prepared by Westat, Rockville, Maryland, under Contract No. 233-02-0087). AHRQ Publication Number 09-0081-EFF. Rockville, MD: Agency for Healthcare Research and Quality; 2009.

    Google Scholar 

  12. DesRoches CM, Campbell EG, Rao SR, Donelan K, Ferris TG, Jha A, Kaushal R, Levy DE, Rosenbaum S, Shields AE, Blumenthal D. Electronic health records in ambulatory care—a national survey of physicians. N Engl J Med. 2008;359(1):50–60.

    Article  PubMed  CAS  Google Scholar 

  13. The South Dakota e-Health Collaborative. Assessing the current state of electronic health records and health information exchange in South Dakota. Available at: http://www.tss.dsu.edu/sdehra/ Accessed on April 19, 2011.

  14. CAHPS Clinician & Group Survey, Adult Primary Care Instrument. CAHPS clinician & group survey and reporting kit. Rockville MD: Agency for Healthcare Research and Quality. Updated 2008. Available at https://www.cahps.ahrq.gov/cahpskit/CG/CGChooseQX.asp. Accessed April 19, 2011.

  15. Ware J Jr, Kosinski M, Keller SD. A 12-item short-form health survey: construction of scales and preliminary tests of reliability and validity. Med Care. 1996;34(3):220–33.

    Article  PubMed  Google Scholar 

  16. Fiscal Policy Institute. The State of Working New York 2003: Regional Economic Profiles. Available at http://www.fiscalpolicy.org/archivepages/sowny_archive.html. Accessed on April 19, 2011.

  17. The Computer Survey Methods Program at the University of California at Berkeley. Computer-Assisted Survey Execution System-CASES. Available at http://cases.berkeley.edu . Accessed on April 19, 2011.

  18. Venkatesh V, Morris MG. User acceptance of information technology: toward a unified view. MIS Quarterly. 2003;23(3):425–78.

    Google Scholar 

  19. US Census Bureau. State and County Quick Facts: compiled from 2008, 2009 survey data. Available at http://quickfacts.census.gov. Accessed on April 19, 2011.

  20. Hillestad R, Bigelow J, Bower A, Girosi F, Meili R, Scoville R, Taylor R. Can electronic medical record systems transform health care? Potential health benefits, savings, and costs. Health Aff (Millwood). 2005;24(5):1103–17.

    Article  Google Scholar 

  21. Tripathi M, Delano D, Lund B, Rudolph L. Engaging patients for health information exchange. Health Affairs (Millwood). 2009;28(2):435–43.

    Article  Google Scholar 

  22. The California Healthcare Foundation. National Consumer Health Privacy Survey 2005. Available at: http://www.chcf.org/publications/2005/11/national-consumer-health-privacy-survey-2005 Accessed on April 19, 2011.

  23. Mandl KD, Kohane IS. Tectonic shifts in the health information economy. N Engl J Med. 2008;358(16):1732–7.

    Article  PubMed  CAS  Google Scholar 

  24. Weingart SN, Pagovich O, Sands DZ, Li JM, Aronson MD, Davis RB, Bates DW, Phillips RS. What can hospitalized patients tell us about adverse events? Learning from patient-reported incidents. J Gen Intern Med. 2005;20(9):830–6.

    Article  PubMed  Google Scholar 

  25. Sequist TD, Zaslavsky AM, Marshall R, Fletcher RH, Ayanian JZ. Patient and physician reminders to promote colorectal cancer screening: a randomized controlled trial. Arch Intern Med. 2009;169(4):364–71.

    Article  PubMed  Google Scholar 

  26. Wuerdeman L, Volk L, Pizziferri L, Tsurikova R, Harris C, Feygin R, Epstein M, Meyers K, Wald JS, Lansky D, Bates DW. How accurate is information that patients contribute to their electronic health record? AMIA Annu Symp Proc. 2005;834:8.

    Google Scholar 

  27. Powell J, Fitton R, Fitton C. Sharing electronic health records: the patient view. Inform Prim Care. 2006;14(1):55–7.

    PubMed  Google Scholar 

  28. Blumenthal D, Glaser JP. Information technology comes to medicine. N Engl J Med. 2007;356(24):2527–34.

    Article  PubMed  CAS  Google Scholar 

  29. Gibbons MC. A historical overview of health disparities and the potential of eHealth solutions. J Med Internet Res. 2005;7(5):e50.

    Article  PubMed  Google Scholar 

  30. Smith V, Gifford K, Kramer S, Dalton J, MacTaggert P, Warner M. State E-Health Activities in 2007: Findings from a State Survey. The Commonwealth Fund, Pub no 1104. 2008.

  31. Brodie M, Flournoy RE, Altman DE, Blendon RJ, Benson JM, Rosenbaum MD. Health information, the Internet, and the digital divide. Health Aff (Millwood). 2000;19(6):255–65.

    Article  CAS  Google Scholar 

  32. Fox S. How gender influences health searches. PEW Internet & American Life Project, August 21, 2007. Available at http://www.pewInternet.org/Commentary/2007/August/How-Gender-Influences-Health-Searches.aspx Accessed on April 19, 2011.

  33. Gauld R, Williams S. Use of the Internet for health information: a study of Australians and New Zealanders. Inform Health Soc Care. 2009;34(3):149–58.

    Article  PubMed  Google Scholar 

  34. Ono H, Zavodny M. Gender and the Internet. Soc Sci Q. 2003;84:111–21.

    Article  Google Scholar 

  35. Wen KY, Kreps G, Zhu F, Miller S. Consumers' perceptions about and use of the Internet for personal health records and health information exchange: analysis of the 2007 Health Information National Trends Survey. J Med Internet Res. 12(4):e73

  36. Goldstein MM, Rein AL. Consumer consent options for electronic health information exchange: policy considerations and analysis. Prepared for the Office of the National Coordinator for Health IT. Washington, DC: George Washington University Medical Center; 2010.

    Google Scholar 

Download references

Funders

The Taconic Independent Practice Association funded this work through a grant to Weill Cornell Medical College. Dr. O’Donnell participated in this study as a fellow funded by the Department of Public Health at Weill Cornell Medical College.

Contributors

The authors would like to thank Rachel Block, Curt Cole, MD, Lori Evans, MPP, MPH, Ellen Flink, MBA, Gil Kuperman, MD, Akshay Kapur, Alex Low, Jason Shapiro, MD, and Adam Wilcox, PhD for their participation in the survey development workgroup. They would also like to thank Randolph Barrows Jr., MD, MS, John Blair, MD, Janlori Goldman, JD, and Art Levin for their input on the survey and Ken Griffin, PhD for his advice on survey methodology.

Conflicts of Interest

None disclosed.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Heather C. O’Donnell MD, MSc.

Electronic Supplementary Material

Below is the link to the electronic supplementary material.

Online Appendix

Appendix: Consumer Health Information Technology and Exchange Telephone Survey (DOC 73 kb)

Rights and permissions

Reprints and permissions

About this article

Cite this article

O’Donnell, H.C., Patel, V., Kern, L.M. et al. Healthcare Consumers’ Attitudes Towards Physician and Personal Use of Health Information Exchange. J GEN INTERN MED 26, 1019–1026 (2011). https://doi.org/10.1007/s11606-011-1733-6

Download citation

  • Received:

  • Revised:

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s11606-011-1733-6

KEY WORDS

Navigation