Abtract
BACKGROUND
Incarceration is associated with poor health and high costs. Given the dramatic growth in the criminal justice system’s population and associated expenses, inclusion of questions related to incarceration in national health data sets could provide essential data to researchers, clinicians and policy-makers.
OBJECTIVE
To evaluate a representative sample of publically available national health data sets for their ability to be used to study the health of currently or formerly incarcerated persons and to identify opportunities to improve criminal justice questions in health data sets.
DESIGN & APPROACH
We reviewed the 36 data sets from the Society of General Internal Medicine Dataset Compendium related to individual health. Through content analysis using incarceration-related keywords, we identified data sets that could be used to study currently or formerly incarcerated persons, and we identified opportunities to improve the availability of relevant data.
KEY RESULTS
While 12 (33%) data sets returned keyword matches, none could be used to study incarcerated persons. Three (8%) could be used to study the health of formerly incarcerated individuals, but only one data set included multiple questions such as length of incarceration and age at incarceration. Missed opportunities included: (1) data sets that included current prisoners but did not record their status (10, 28%); (2) data sets that asked questions related to incarceration but did not specifically record a subject’s status as formerly incarcerated (8, 22%); and (3) longitudinal studies that dropped and/or failed to record persons who became incarcerated during the study (8, 22%).
CONCLUSIONS
Few health data sets can be used to evaluate the association between incarceration and health. Three types of changes to existing national health data sets could substantially expand the available data, including: recording incarceration status for study participants who are incarcerated; recording subjects’ history of incarceration when this data is already being collected; and expanding incarceration-related questions in studies that already record incarceration history.
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Author Contributions
Study Concept and Design: Ahalt, Williams
Analysis and Interpretation of Data: Ahalt, Binswanger, Steinman and Williams
Preparation of Manuscript, Critical Review: Ahalt, Binswanger, Steinman, Tulsky and Williams
No other parties contributed substantially to this research or to preparation of this manuscript.
Funders
Dr. Williams is supported by the National Institute of Aging (K23AG033102), the UCSF Hartford Center of Excellence, and the Langeloth Foundation. Dr. Binswanger is supported by the Robert Wood Johnson Physician Faculty Scholars Program. These funding sources had no role in the design and conduct of the study; collection, management, analysis, and interpretation of the data; or preparation, review, or approval of the manuscript. Mr. Ahalt, Dr. Williams, and Dr. Steinman are employees of the Department of Veterans Affairs. The opinions expressed in this manuscript may not represent those of the VA.
Prior Presentations
The abstract for this paper has been presented as a poster at the annual meeting of the Society of General Internal Medicine, May 5, 2011.
Conflicts of Interest
Dr. Williams has been a consultant about prison conditions of confinement. Dr. Steinman helped to create the SGIM Dataset Compendium. These relationships did not affect the analysis of the data or preparation of this manuscript. Other authors have no conflicts of interest to disclose, including relevant financial interests, activities, relationships, or affiliations.
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Ahalt, C., Binswanger, I.A., Steinman, M. et al. Confined to Ignorance: The Absence of Prisoner Information from Nationally Representative Health Data Sets. J GEN INTERN MED 27, 160–166 (2012). https://doi.org/10.1007/s11606-011-1858-7
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DOI: https://doi.org/10.1007/s11606-011-1858-7