Skip to main content
Log in

Changes in the Mother–Child Relationship During the Transition to Adulthood for Youth with Autism Spectrum Disorders

  • Original Paper
  • Published:
Journal of Autism and Developmental Disorders Aims and scope Submit manuscript

Abstract

We examined whether exiting high school was associated with changes in the mother–child relationship. Participants were 170 mothers of youth with ASD who were part of our larger longitudinal study and who exited high school during the study; data were collected four times over 7 years. Results indicated improvement in the mother–child relationship while in high school; however, improvement in all indices slowed or stopped after exit. Mothers of youth with ASD without an intellectual disability (ID) and who had more unmet service needs evidenced the least improvement after exit. Our findings provide further evidence that the years after high school exit are a time of increased risk, especially for those with ASD without ID and whose families are under-resourced.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Fig. 1
Fig. 2

Similar content being viewed by others

References

  • Abbeduto, L., Seltzer, M. M., Shattuck, P. T., Krauss, M. K., Orsmond, G. I., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with Autism, down syndrome, of Fragile X syndrome. American Journal on Mental Retardation, 103, 237–254.

    Article  Google Scholar 

  • Barrowclough, C., & Hooley, J. M. (2003). Attributions and expressed emotion: A review. Clinical Psychology Review, 23, 849–880.

    Article  PubMed  Google Scholar 

  • Beck, A., Daley, D., Hastings, R. P., & Stevenson, J. (2004). Mothers’ expressed emotion towards children with and without intellectual disabilities. Journal of Intellectual Disability Research, 48, 628–638.

    Article  PubMed  Google Scholar 

  • Bengtson, V. L., & Allen, K. R. (1993). The life course perspective applied to families over time. In P. Boss, W. Doherty, R. LaRossa, W. Schumm, & S. Steinmetz (Eds.), Sourcebook of family theories and methods: A contextual approach (pp. 469–498). New York: Plenum Press.

    Chapter  Google Scholar 

  • Bengtson, V. L., & Schrader, S. S. (1982). Parent-child relationships. In D. J. Mangon & W. A. Peterson (Eds.), Research instruments in social gerontology (Vol. 2) (pp. 115–185). Minneapolis: University of Minnesota Press.

    Google Scholar 

  • Bouma, R., & Schweitzer, R. (1990). The impact of chronic childhood illness of family stress: A comparison between autism and cystic fibrosis. Journal of Clinical Psychology, 46, 722–730.

    Article  PubMed  Google Scholar 

  • Bruininks, R. H., Woodcock, R. W., Weatherman, R. F., & Hill, B. K. (1996). Scales of independent behavior revised. Rolling Meadows, IL: Riverside Publishing.

    Google Scholar 

  • Bryk, A. S., & Raudenbush, S. W. (1987). Application of hierarchical linear models to assessing change. Psychological Bulletin, 101, 147–158.

    Article  Google Scholar 

  • Bryson, S. E., & Smith, I. M. (1998). Epidemiology of autism: Prevalence, associated characteristics, and implications for research and service delivery. Mental Retardation and Developmental Disabilities Research Reviews, 4, 97–103.

    Article  Google Scholar 

  • Butzlaff, R., & Hooley, J. (1998). Expressed emotion and psychiatric relapse. Archives of General Psychiatry, 55, 547–552.

    Article  PubMed  Google Scholar 

  • Caspi, A., Moffit, T., Morgan, J., Rutter, M., Taylor, A., Arseneault, L., et al. (2004). Maternal expressed emotion predicts children’s antisocial behavior problems: Using monozygotic-twin differences to identify environmental effects on behavioral development. Developmental Psychology, 40, 149–161.

    Article  PubMed  Google Scholar 

  • Donovan, A. M. (1988). Family stress and ways of coping with adolescents who have handicaps: Maternal perceptions. American Journal on Mental Retardation, 92, 502–509.

    PubMed  Google Scholar 

  • Dossetor, D. R., Nichol, A. R., Stretch, D. D., & Rajkhowa, S. J. (1994). A study of expressed emotion in the parental primary carers of adolescents with intellectual impairment. Journal of Intellectual Disability Research, 38, 487–499.

    Article  PubMed  Google Scholar 

  • Dumas, J. E., Wolf, L. C., Fisman, S. N., & Culligan, A. (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, Down syndrome, behavior disorders, and normal development. Exceptionality, 2, 97–110.

    Article  Google Scholar 

  • Eaves, L. C., & Ho, H. H. (2008). Young adult outcomes of autism spectrum disorders. Journal of Autism and Developmental Disorders, 38, 739–747.

    Article  PubMed  Google Scholar 

  • Farley, M. A., McMahon, W. M., Fombonne, E., Jenson, W. J., Miller, J., Gardner, M., et al. (2009). Twenty-year outcome for individuals with autism and average of near-average cognitive abilities. Autism Research, 2, 109–118.

    Article  PubMed  Google Scholar 

  • Fombonne, E. (2003). Epidemiological surveys of autism and other pervasive developmental disorders: An update. Journal of Autism and Developmental Disorders, 33, 365–382.

    Article  PubMed  Google Scholar 

  • Fong, L., Wilgosh, L., & Sobsey, D. (1993). The experience of parenting an adolescent with autism. International Journal of Disability, Development, and Education, 40, 105–113.

    Article  Google Scholar 

  • Francis, D. J., Fletcher, J. M., Steubing, K. K., Davidson, K. C., & Thompson, N. M. (1991). Analysis of change: Modeling individual growth. Journal of Consulting and Clinical Psychology, 59, 27–37.

    Article  PubMed  Google Scholar 

  • Fussell, E., & Furstenberg, F. F. (2005). The transition to adulthood during the twentieth century. In R. A. Settersten, F. F. Furstenberg, & R. G. Rumbaut (Eds.), On the frontier of adulthood: Theory, research and public policy (pp. 29–75). Chicago: University of Chicago Press.

    Google Scholar 

  • Gillberg, C., & Steffenburg, S. (1987). Outcome and prognostic factors in infantile autism and similar conditions: A population-based study of 46 cases followed through puberty. Journal of Autism and Developmental Disorders, 17, 273–287.

    Article  PubMed  Google Scholar 

  • Glutting, J. J., Adams, W., & Sheslow, D. (2000). Wide range intelligence test. Wilmington, DE: Wide Range.

    Google Scholar 

  • Greenberg, J. S., Seltzer, M. M., Hong, J., & Orsmond, G. I. (2006). Bidirectional effects of expressed emotion and behavior problems and symptoms in adolescents and adults with autism. American Journal on Mental Retardation, 111, 229–249.

    Article  PubMed  Google Scholar 

  • Greenberg, J. S., Seltzer, M. M., Krauss, M. W., Chou, R. J., & Hong, J. (2004). The effect of quality of the relationship between mothers and adult children with disabilities: The mediating role of optimism. American Journal of Orthopsychiatry, 74, 14–25.

    Article  PubMed  Google Scholar 

  • Hahlweg, K., Goldstein, M. J., Nuechterlein, K. H., Magana, A. B., Mintz, J., Doane, J. A., et al. (1989). Expressed emotion and patient-relative interaction in families of recent onset schizophrenics. Journal of Consulting and Clinical Psychology, 57, 11–18.

    Article  PubMed  Google Scholar 

  • Hastings, R. P., Daley, D., Burns, C., & Beck, A. (2006). Maternal distress and expressed emotion: Cross-sectional and longitudinal relationships with behavior problems of children with intellectual disabilities. American Journal on Mental Retardation, 111, 48–61.

    Article  PubMed  Google Scholar 

  • Holroyd, J., & McArthur, D. (1976). Mental retardation and stress on the parents: A contrast between Down’s syndrome and childhood autism. American Journal on Mental Deficiency, 80, 431–436.

    Google Scholar 

  • Howlin, P. (2005). Outcomes in autism spectrum disorders. In F. R. Volkmar, R. Paul, A. Klin, & D. Cohen (Eds.), Handbook of autism and developmental disorders, vol. 1: Diagnosis, development, neurobiology, and behavior (3rd ed., pp. 201–220). Hoboken, NJ: Wiley.

    Google Scholar 

  • Howlin, P., Alcock, J., & Burkin, C. (2005). An 8 year follow-up of a specialist supported employment service for high-ability adults with autism or Asperger syndrome. Autism, 9, 533–549.

    Article  PubMed  Google Scholar 

  • Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with Autism. Journal of Child Psychology and Psychiatry, 45, 212–229.

    Article  PubMed  Google Scholar 

  • Kidwell, J., Fischer, J. L., Dunham, R. M., & Baranowski, M. (1983). Parents and adolescents: Push and pull of change. In H. I. McCubbin & D. R. Figley (Eds.), Stress in the family: Coping with normative transitions (pp. 74–89). New York: Bruner.

    Google Scholar 

  • Krauss, M. W., Seltzer, M. M., & Jacobson, H. T. (2005). Adults with autism living at home or in non-familial settings: Positive and negative aspects of residential status. Journal of Intellectual Disability Research, 49, 111–124.

    Article  PubMed  Google Scholar 

  • Lam, D., Giles, A., & Lavender, A. (2003). Carers’ expressed emotion, appraisal of behavioural problems and stress in children attending schools for learning disabilities. Journal of Intellectual Disability Research, 47, 456–463.

    Article  PubMed  Google Scholar 

  • Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., et al. (2008). Disparities in diagnosis and access to health services for children with autism: Data from the national survey of children’s health. Journal of Developmental and Behavioral Pediatrics, 29, 152–160.

    Article  PubMed  Google Scholar 

  • Lord, C., Rutter, M., & Le Couteur, A. (1994). Autism diagnostic interview-revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal on Mental Retardation, 112, 401–417.

    Google Scholar 

  • Lounds, J., Seltzer, M. M., Greenberg, J. S., & Shattuck, P. T. (2007). Transition and change in adolescents and young adults with autism: Longitudinal effects on maternal well-being. American Journal on Mental Retardation, 112, 401–417.

    Article  PubMed  Google Scholar 

  • Luckasson, R., Borthwick-Duffy, S., Buntinx, W. H. E., Coulter, D. L., Craig, E. M., Reeve, A., et al. (2002). Mental retardation: Definition, classification, and systems of supports (10th ed.). Washington, DC: American Association on Mental Retardation.

    Google Scholar 

  • Mandell, D. S., Novak, M. M., & Zubritsky, C. D. (2005). Factors associated with age of diagnosis among children with autism spectrum disorders. Pediatrics, 116, 1480–1486.

    Article  PubMed  Google Scholar 

  • McCarty, C., Lau, A., Valeri, S., & Weisz, J. (2004). Parent-child interactions in relation to critical and emotionally overinvolved expressed emotion (EE): Is EE a proxy for behavior? Journal of Abnormal Child Psychology, 32, 83–93.

    Article  PubMed  Google Scholar 

  • Montemayor, R., Eberly, M., & Flannery, D. J. (1993). Effects of pubertal status and conversation topic on parent and adolescent affective expression. Journal of Early Adolescence, 13, 431–447.

    Article  Google Scholar 

  • Moore, E., & Kuipers, E. (1999). The measurement of expressed emotion in relationships between staff and services users: The use of short speech samples. British Journal of Clinical Psychology, 38, 345–356.

    Article  PubMed  Google Scholar 

  • Orsmond, G., Seltzer, M., Greenberg, J., & Krauss, M. (2006). Mother-child relationship quality among adolescents and adults with autism. American Journal on Mental Retardation, 111, 121–137.

    Article  PubMed  Google Scholar 

  • Raudenbush, S. W., & Bryk, A. S. (2002). Hierarchical linear models: Applications and data analysis methods (2nd ed.). Thousand Oaks, CA: Sage.

    Google Scholar 

  • Rodrigue, J. R., Morgan, S. B., & Geffken, G. R. (1990). Families of autistic children: Psychological functioning of mothers. Journal of Clinical Psychology, 19, 371–379.

    Google Scholar 

  • Rossi, A. S., & Rossi, P. H. (1990). Of human bonding: Parent-child relations across the life course. New York: de Gruyter.

    Google Scholar 

  • Ryff, C. D., & Seltzer, M. M. (Eds.). (1996). The parental experience at midlife. Chicago: University of Chicago Press.

    Google Scholar 

  • Seltzer, M. M., Greenberg, J. S., Taylor, J. L., Smith, L., Orsmond, G. I., Esbensen, A., & Hong, J. (in press). Adolescents and adults with Autism spectrum disorders. In D. G. Amaral, G. Dawson, & D. H. Geschwind (Eds.), Autism Spectrum Disorders. New York: Oxford University Press.

  • Seltzer, M. M., Krauss, M. W., Orsmond, G. I., & Vestal, C. (2001). Families of adolescents and adults with autism: Uncharted territory. International Review of Research in Mental Retardation, 23, 267–294.

    Article  Google Scholar 

  • Seltzer, M. M., Krauss, M. W., Shattuck, P. T., Orsmond, G., Swe, A., & Lord, C. (2003). The symptoms of autism spectrum disorders in adolescence and adulthood. Journal of Autism and Developmental Disorders, 33, 565–581.

    Article  PubMed  Google Scholar 

  • Singer, J. D., & Willett, J. B. (2003). Applied longitudinal data analysis: Modeling change and even occurrence. Oxford, England: Oxford University Press.

    Google Scholar 

  • Smith, G. C. (1997). Aging families of adults with mental retardation: Patterns and correlates of service use, need, and knowledge. American Journal on Mental Retardation, 102, 13–26.

    Article  PubMed  Google Scholar 

  • Smith, L., Greenberg, J., Seltzer, M., & Hong, J. (2008). Symptoms and behavior problems of adolescents and adults with autism: Effects of mother-child relationship quality, warmth, and praise. American Journal on Mental Retardation, 113, 387–402.

    Article  PubMed  Google Scholar 

  • Sparrow, S. S., Carter, A. S., & Cicchetti, D. V. (1993). Vineland screener: Overview, reliability, validity, administration, and scoring. New Haven: Yale University Child Study Center.

    Google Scholar 

  • Stephens, M. P., & Kinney, J. M. (1989). Caregiver stress instruments: Assessment of content and measurement quality. Gerontology Review, 2, 40–54.

    Google Scholar 

  • Tarrier, N., Barrowclough, C., Ward, J., Donaldson, C., Burns, A., & Gregg, L. (2002). Expressed emotion and attributions in the carers of patients with Alzheimer’s disease: The effect of carer burden. Journal of Abnormal Psychology, 111, 340–349.

    Article  PubMed  Google Scholar 

  • Taylor, J. L., & Seltzer, M. M. (2010a). Changes in the autism behavioral phenotype during the transition to adulthood. Journal of Autism and Developmental Disorders, 40, 1431–1446.

    Article  PubMed  Google Scholar 

  • Taylor, J. L., & Seltzer, M. M. (2010b). Employment and post-secondary education activities for young adults with Autism Spectrum Disorders during the transition to adulthood. Journal of Autism and Developmental Disorders. doi: 10.1007/s10803-010-1070-3.

  • Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P. (2007). Access to care for autism-related services. Journal of Autism and Developmental Disorders, 37, 1902–1912.

    Article  PubMed  Google Scholar 

  • Van Humbeeck, G., Van Audenhove, C., De Hert, M., Pieters, G., & Storms, G. (2002). Expressed emotion: A review of assessment instruments. Clinical Psychology Review, 22, 321–341.

    Article  Google Scholar 

  • Vaughn, C. E., & Leff, J. P. (1976). The influence of family and social factors on the course of psychiatric illness. British Journal of Psychiatry, 129, 125–137.

    Article  PubMed  Google Scholar 

  • Wearden, A., Tarrier, N., Barrowclight, C., Zastowny, T., & Rahill, A. (2000). A review of expressed emotion research in health care. Clinical Psychology Review, 20, 633–666.

    Article  PubMed  Google Scholar 

  • Weisman, A., Lopez, S. R., Karno, M., & Jenkins, J. (1993). An attributional analysis of expressed emotion in Mexican-American families with schizophrenia. Journal of Abnormal Psychology, 102, 601–606.

    Article  PubMed  Google Scholar 

  • Wolf, L. C., Noh, S., Fisman, S. N., & Speechley, M. (1989). Psychological effects of parenting stress on parents of autistic children. Journal of Autism and Developmental Disorders, 19, 157–166.

    Article  PubMed  Google Scholar 

  • Woo, S. M., Goldstein, M. J., & Nuechterlein, K. H. (2004). Relatives’ affective style and the expression of subclinical psychopathology in patients with schizophrenia. Family Process, 43, 233–247.

    Article  PubMed  Google Scholar 

  • Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20, 649–655.

    Article  PubMed  Google Scholar 

Download references

Acknowledgments

This project was supported by the Marino Autism Research Institute (J.L. Taylor, PI), the National Institute on Aging (R01 AG08768, M.M. Seltzer, PI) and the Eunice Kennedy Shriver National Institute of Child Health and Human Development (P30 HD15052, E.M. Dykens, PI; P30 HD03352, M.M. Seltzer PI).

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Julie Lounds Taylor.

Rights and permissions

Reprints and permissions

About this article

Cite this article

Taylor, J.L., Seltzer, M.M. Changes in the Mother–Child Relationship During the Transition to Adulthood for Youth with Autism Spectrum Disorders. J Autism Dev Disord 41, 1397–1410 (2011). https://doi.org/10.1007/s10803-010-1166-9

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s10803-010-1166-9

Keywords

Navigation