3Self-management interventions in the digital age: New approaches to support people with rheumatologic conditions
Section snippets
The concept of self-management
The concept of self-management is not new (Fig. 1). A recent paper by Kendall et al. [12] suggested that examples of self-management activities have existed throughout history, with the earliest activities rooted in a political context. In the early 1500s, self-organising advocacy groups were present to defend the rights of the marginalised population against the ruling elite and the government. The application of self-management for maintaining health and well-being could be dated back to 1747
Self-management education: do they meet patients' needs?
Recent literature suggests that self-management education can empower patients to become effective health-care consumers [25], [26], in addition to improving clinical outcomes. Lorig and Holman [15] distinguished patient education from self-management education. The latter employs a standardised approach to facilitate development of skills in problem solving, decision making, finding resources, forming partnerships with health-care providers and taking action. This is different from traditional
Digital media offer new ways for supporting self-management
Current evidence supports the use of digital media for improving the dissemination of health-related information and resources to support self-management [35], [36], [37], [38]. Using display platforms that vary from large screen displays to small mobile devices, applications that comprise multi-media elements can be used to deliver tailored information [39]. Various artistic forms, such as drama, music, dance and photography, may also be presented through the Internet and mobile applications
Online self-management interventions for patients with arthritis
For this review, we searched Medline from 1990 to March 2012 using the key terms ‘arthritis’ and ‘self-management’. Eligible articles were those that described or evaluated self-management interventions for patients with arthritis delivered via the Internet or mobile devices. A total of 257 articles were identified; of those, eight articles [24], [51], [52], [53], [54], [55], [56], [57] from six studies met the inclusion criteria (Table 1).
In 2001, the UK Arthritis Research Campaign developed
Online self-management interventions for patients with chronic disease
In addition to the eight studies, we identified a Cochrane review (updated in 2009) that examined the effectiveness of interactive health communication applications for people with chronic disease [69]. Interactive health communication applications are computer-based information programmes that aim to provide health information plus social support, decision support and/or behaviour change support. Users of these applications may also interact with clinical experts and other users. Twenty-four
Considerations for using online self-management interventions
The world is ready for digital media programmes to support self-management. Simple interventions, such as the use of text messaging in mobile devices, have successfully improved the adherence to medication in adults with HIV infection living in developing countries [70]. Other countries, such as Canada, are ideal for the use of computerised and mobile devices to deliver health-related interventions because of the geographically scattered population (nearly 20% living in rural and remote areas
Conclusion
In the past 30 years, we have witnessed the accumulation of evidence supporting the use of self-management programmes in patients with arthritis. In fact, these programmes are now considered a key component of quality care. To increase access to self-management interventions among those who have difficulties participating in face-to-face programmes, there has been an increasing use of digital media as a delivery method. Research in this area is still at its infancy; however, the early results
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PAINSTORIES – Exploring the Temporal Developments in the Challenges, Barriers, and Self-Management Needs of Adolescents with Longstanding Knee Pain: A Qualitative, Retrospective Interview Study with Young Adults Experiencing Knee Pain Since Adolescence
2022, Journal of PainCitation Excerpt :Thus, educating adolescents should be an ongoing collaboration where clinicians provide reassurance, advice and practice corrections. Previous studies highlight the first clinical contact as a teachable moment32, a key insight corroborated this, by highlighting how getting a ‘name’ from a healthcare provider alleviated our participants doubts, and empowered them to transcend into the ‘knowledge phase’ and commence exploring the boundaries of their knee pain. Furthermore, adolescents’ ‘functional theories’ can sometimes result in counter-productive behavioral choices and may need to be discussed with clinicians to aid their construction of knowledge and remove cognitive self-management barriers.
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